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Flo's avatar

This is such a timely piece for me. I have been struggling a lot cognitively, and particularly because of how much I’m affected by exertion. It also flares up physical stuff too. But what I love about this is how you kinda “normalize” the effects like not being able to read your usual stuff/a fall book or just how things vary based on your low and high days. So I really appreciate this. Thanks for writing it!

Mariana Garrettson's avatar

Flo, I’m so glad it got to you at a helpful moment! The ongoing process of re-defining “normal” is SO real. Thank you for reading and reaching out. Best wishes!

Flo's avatar

It really, really is. But it’s nice to hear from folks on how they navigate things. Always learning! Of course, look forward to more!

Mariana Garrettson's avatar

Thank you! Thats fascinating that sound from one side was worse than the other. This stuff is so bewildering sometimes!

I hope it didn’t sound like I was suggesting that my hierarchy should be anybody else’s. I just recently came to the realization that we can pace ourselves cognitively like we do physically.

I wish you moments or even “gasp” whole days of cognitive ease!

NiftyKeisha's avatar

So well said and broken down! It’s so interesting how cognitive drain is different for each of us. At my worst, audio listening of any kind would send me into full shutdown mode (this was especially when the sound was being emitting from my left side). I could watch fifteen minutes of TV before I could start listening to audio, which I always found so strange/backwards. I’m happy to hear that you’ve been able to add more things. Thanks for sharing your experience!